Name
Nothing About Us Without Us: Partnering with Adults with FASD to Develop Mobile Health Tools for Condition Management
Date & Time
Thursday, October 14, 2021, 10:30 AM - 11:45 AM
Speakers
Christie Petrenko - Mt. Hope Family Center, University of Rochester
Cristiano Tapparello - University of Rochester
Emily Speybroeck - Mt. Hope Family Center, University of Rochester
Emily Hargrove - The Papillion Center for FASD
Midori Harth - FASD Changemakers
Katrina Griffin - FASD Changemakers
CJ Lutke - FASD Changemakers
Myles Himmelreich - FASD Changemakers
Anique Lutke - FASD Changemakers
Maggie May - FASD Changemakers
Cristiano Tapparello - University of Rochester
Emily Speybroeck - Mt. Hope Family Center, University of Rochester
Emily Hargrove - The Papillion Center for FASD
Midori Harth - FASD Changemakers
Katrina Griffin - FASD Changemakers
CJ Lutke - FASD Changemakers
Myles Himmelreich - FASD Changemakers
Anique Lutke - FASD Changemakers
Maggie May - FASD Changemakers
Description
In this dynamic presentation, you'll hear about a collaborative project between researchers at the University of Rochester and members of the Adult Leadership Committee (ALC). Learn about the work they're doing to develop mobile health tools to support FASD condition management and self-advocacy. This presentation features an exciting demonstration of the “My Health Coach” app prototypes. There will also be a panel discussion with members of the ALC advisory board about their experiences on this project. After learning more about the project and the prototypes, you will have the unique opportunity to provide feedback on the app prototypes.
Session Type
Breakout Session A