The Adult Leadership Committee (ALC) of FASD Changemakers is a renowned group of citizen researchers and experts on living with an FASD. In this presentation, they will be reviewing a comprehensive survey they conducted in which more than 300 questions - spanning many facets of life - were asked of individuals with an FASD.  While the study was designed to learn more about the quality of life of people impacted by FASD, responses revealed significant equity disparities to be the larger focus.  This is a can't-miss session centered around the lessons of lived experience. Never before has there been a survey on the FASD community that is this extensive and thorough. Its findings provide urgently needed information for families, professionals, service providers, researchers and members of government, as well as for individuals with FASD themselves who have said these questions should – and need to be - asked.